Yesterday I went to see my respiratory consultant at Spire Clare Park Hospital. He hadn’t had the opportunity to review my CT scan results in depth, but will be doing so over the next week.

We had a good chat about how I am feeling, which for the record is a lot better than I have felt in a long time, and we discussed the symptoms / side effects I am still experiencing.

As I said I am feeling a lot better, but I still get tired very easily. The difference now, as I was able to explain to him, is that it is “tired” and not the same “fatigue” feeling that I was previously experiencing. Previously the “fatigue” was all consuming. As I have said before, the nearest thing I could describe it as anything like was jet lag.

When it hit I would turn into a zombie. I wasn’t able to think. I would feel sick and suffer extreme headaches.

Now, well I just feel tired. I am still able to think and function, all be it in a grouchy grumpy kind of way. Not that you would be able to tell of course as that is my normal demeanour, but I am able to function.

He wants to see me in another month, so he can once again check my chest and lung function, but mainly to monitor for any signs of vasculitis.

He has asked me to slowly start reducing the amount of steroids I am taking. The thinking being if the Sarcoid is going to flare, or if Wegners is present, they will show as I reduce the steroid dosage. I will be monitored closely during this period so they can catch anything early ensuring that I don’t have to go through all this again.

More good news…

Both my consultants have now however cleared me to return to work. I have a meeting next Wednesday to discuss a return to work plan that has been put together, and will know more after that meeting but it is going to be strange getting back into the swing of things. I’ll let you know of course how it goes!